Resource Guide for Parents With Individual Diagnosis
Resources for Individual Diagnosis:
Autism Spectrum Disorder:
Emotional Behavior Disability:
Intellectual Disability:
Blind and Visual Disability:
Hearing Disability:
Down Syndrome
Rare and Unknown Diseases and Disorders
Autism Spectrum Disorder:
- Autism Society: https://www.autism-society.org/
- Autism Speaks: https://www.autismspeaks.org/
- What is Autism? Khan Academy Video: https://www.youtube.com/watch?v=WuSuIgiOPqM&feature=youtu.be
- Wisconsin Early Autism Project: https://www.wiautism.com/
Emotional Behavior Disability:
- Center for Parent Information and Resources: https://www.parentcenterhub.org/emotionaldisturbance/
- PACER (Children's Mental Health and Emotional or Behavioral Disorders Project): https://www.pacer.org/cmh/
- Understood - For Learning and Thinking Differences: https://www.understood.org/en
Intellectual Disability:
- American Association on Intellectual and Developmental Disabilities: http://www.aaidd.org/
- The Arc: https://thearc.org/?pid=2543
- Understanding Intellectual Disability and Health by the University of Hertfordshire: http://www.intellectualdisability.info/
- Special Olympics: https://www.specialolympics.org/about/intellectual-disabilities
- The Waisman Center (Madison, WI): https://www.waisman.wisc.edu/
Blind and Visual Disability:
- Wisconsin Center for the Blind and Visually Impaired: https://www.wcbvi.k12.wi.us/
- American Council of the Blind: https://acb.org/
- National Organization of Parents of Blind Children: http://nopbc.org/
- Wisconsin Department of Public Instruction (Vision): https://dpi.wi.gov/sped/program/vision
Hearing Disability:
- Wisconsin School for the Deaf: http://wesp-dhh.wi.gov/wsd/
- Wisconsin Hands and Voices: http://www.handsandvoiceswi.org/
- Supporting Deaf and Hard of Hearing Students: https://www.accreditedschoolsonline.org/resources/deaf-and-hard-of-hearing-students/
- American Sign Language Resource Guide: http://www.wiseoldsayings.com/asl-resource-guide.php
Down Syndrome
- National Down Syndrome Congress: https://www.ndsccenter.org/
- National Down Syndrome Society: https://www.ndss.org/
- Down Syndrome Association of Wisconsin: https://www.dsaw.org/
- GiGi's Playhouse Milwaukee: https://gigisplayhouse.org/milwaukee/
Rare and Unknown Diseases and Disorders
- NORD (National Organization for Rare Diseases): https://rarediseases.org/for-patient-organizations/membership-profiles/member-list/
- EveryLife Foundation for Rare Diseases: https://everylifefoundation.org/
- Children's Hospital Wisconsin Undiagnosed and Rare Diseases Program: https://chw.org/medical-care/genetics-and-genomics-program/programs-and-services/rare-and-undiagnosed
- Genetic and Rare Diseases Information Center: https://rarediseases.info.nih.gov/guides/pages/120/support-for-patients-and-families